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    Welcome. We Are a Patient-To-Patient Support Community for People Living with Dysautonomia

    Our mission at is to ensure that patients living with Dysautonomia, as well as their caregivers, family, and friends, have a safe and supportive place to connect with others like them. Ben’s Friends is a network of safe and supportive patient communities for anyone affected by a rare disease or chronic condition. Recognized as …

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    Welcome to Living With Dysautonomia

    What isLiving With Dysautonomia? is a dedicated patient-to-patient support community for patients and families affected by Dysautonomia. is powered by, a group of patient support communities for rare diseases, and is run by volunteer moderators who have been affected with Dysautonomia. Who can join If you or your family has been affected by Dysautonomia, consider your second …

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    Treatment and Prognosis

    Treatment Treatment requires a multi-disciplinary approach which most often encompasses medical and pharmacological modalities as well as physical therapy, exercise therapy, and family caregiving/chronic illness/counseling. There is no magic pill or cure for these conditions. The recovery process will involve all of the above modalities along with determination from the patient, time for treatments to …

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